Stakeholders’ attitudes towards biobanks in Malaysia

The Malaysian Cabinet’s approval of MyCohort in 2005 was seen as the crucial step toward the country having its very first biobank to improve the prevention, diagnosis and treatment of diseases. Past studies have shown that public attitudes towards biobanking depend heavily upon several factors incl...

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Main Authors:	Hasrizul Hashim, Latifah Amin, Zurina Mahadi, Khaidzir Ismail
Format:	Article
Language:	English
Published:	Penerbit Universiti Kebangsaan Malaysia 2017
Online Access:	http://journalarticle.ukm.my/11215/ http://journalarticle.ukm.my/11215/ http://journalarticle.ukm.my/11215/1/12764-51482-1-PB.pdf

id	ukm-11215
recordtype	eprints
spelling	ukm-112152018-01-13T10:39:41Z http://journalarticle.ukm.my/11215/ Stakeholders’ attitudes towards biobanks in Malaysia Hasrizul Hashim, Latifah Amin, Zurina Mahadi, Khaidzir Ismail, The Malaysian Cabinet’s approval of MyCohort in 2005 was seen as the crucial step toward the country having its very first biobank to improve the prevention, diagnosis and treatment of diseases. Past studies have shown that public attitudes towards biobanking depend heavily upon several factors including public engagement with biobanks, trust in key actors, privacy and data security, perceived benefit, altruism and certain demographic variables. The objective of this paper is to assess and compare the attitude levels of the Malaysian stakeholders’ towards the application of biobanks across education levels and religion. A survey was carried out on 509 adult respondents in the Klang Valley region of Malaysia. Results of the study have substantiated that the Malaysian stakeholders’ attitudes towards biobank were classified as high. Despite their high levels of perceived benefit and religious acceptance, they also expressed moderately high levels of concern when it comes to issues of data and specimen protection; this suggests that the Malaysian stakeholders also tend to be critical upon expressing their views towards a complex system such as biobanks. One-way MANOVA initially has detected a significant difference of attitude towards biobanks across stakeholder groups, education level and religion. Series of univariate analysis following the MANOVA, as well as Post Hoc analysis, also confirm significant difference of attitude existing across stakeholders; however, no significant differences were detected across education level and religion. The research finding serves as a useful benchmark for scientists and government regulators to understand public attitudes to biobanks before they are set into use. Penerbit Universiti Kebangsaan Malaysia 2017 Article PeerReviewed application/pdf en http://journalarticle.ukm.my/11215/1/12764-51482-1-PB.pdf Hasrizul Hashim, and Latifah Amin, and Zurina Mahadi, and Khaidzir Ismail, (2017) Stakeholders’ attitudes towards biobanks in Malaysia. AKADEMIKA, 87 (1). pp. 49-64. ISSN 0126-5008 http://ejournal.ukm.my/akademika/issue/view/860
repository_type	Digital Repository
institution_category	Local University
institution	Universiti Kebangasaan Malaysia
building	UKM Institutional Repository
collection	Online Access
language	English
description	The Malaysian Cabinet’s approval of MyCohort in 2005 was seen as the crucial step toward the country having its very first biobank to improve the prevention, diagnosis and treatment of diseases. Past studies have shown that public attitudes towards biobanking depend heavily upon several factors including public engagement with biobanks, trust in key actors, privacy and data security, perceived benefit, altruism and certain demographic variables. The objective of this paper is to assess and compare the attitude levels of the Malaysian stakeholders’ towards the application of biobanks across education levels and religion. A survey was carried out on 509 adult respondents in the Klang Valley region of Malaysia. Results of the study have substantiated that the Malaysian stakeholders’ attitudes towards biobank were classified as high. Despite their high levels of perceived benefit and religious acceptance, they also expressed moderately high levels of concern when it comes to issues of data and specimen protection; this suggests that the Malaysian stakeholders also tend to be critical upon expressing their views towards a complex system such as biobanks. One-way MANOVA initially has detected a significant difference of attitude towards biobanks across stakeholder groups, education level and religion. Series of univariate analysis following the MANOVA, as well as Post Hoc analysis, also confirm significant difference of attitude existing across stakeholders; however, no significant differences were detected across education level and religion. The research finding serves as a useful benchmark for scientists and government regulators to understand public attitudes to biobanks before they are set into use.
format	Article
author	Hasrizul Hashim, Latifah Amin, Zurina Mahadi, Khaidzir Ismail,
spellingShingle	Hasrizul Hashim, Latifah Amin, Zurina Mahadi, Khaidzir Ismail, Stakeholders’ attitudes towards biobanks in Malaysia
author_facet	Hasrizul Hashim, Latifah Amin, Zurina Mahadi, Khaidzir Ismail,
author_sort	Hasrizul Hashim,
title	Stakeholders’ attitudes towards biobanks in Malaysia
title_short	Stakeholders’ attitudes towards biobanks in Malaysia
title_full	Stakeholders’ attitudes towards biobanks in Malaysia
title_fullStr	Stakeholders’ attitudes towards biobanks in Malaysia
title_full_unstemmed	Stakeholders’ attitudes towards biobanks in Malaysia
title_sort	stakeholders’ attitudes towards biobanks in malaysia
publisher	Penerbit Universiti Kebangsaan Malaysia
publishDate	2017
url	http://journalarticle.ukm.my/11215/ http://journalarticle.ukm.my/11215/ http://journalarticle.ukm.my/11215/1/12764-51482-1-PB.pdf
first_indexed	2023-09-18T19:59:39Z
last_indexed	2023-09-18T19:59:39Z
_version_	1777406763082973184

Stakeholders’ attitudes towards biobanks in Malaysia

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