A narrative inquiry of Malaysian parents’ and caregivers’ experiences in detecting autism and providing interventions

There is a lack of knowledge among Malaysian parents in detecting signs of autism in their children. This situation could lead to late detection and intervention. Children’s condition would be harder to improve and this would affect the parents’ and caregivers’ well-being. This study explored pare...

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Main Authors:	Sani, Badariah, Wan Chik, Muhmad Noor, Raslee, Nor Nadia, Badzis, Mastura
Format:	Article
Language:	English
Published:	TEXTROAD Publishing Corporation 2017
Subjects:	LC1390 Education of special classes of persons
Online Access:	http://irep.iium.edu.my/70935/ http://irep.iium.edu.my/70935/ http://irep.iium.edu.my/70935/2/J.%20Appl.%20Environ.%20Biol.%20Sci.%2C%207%288%29124-134%2C%202017.pdf

id	iium-70935
recordtype	eprints
spelling	iium-709352019-07-12T04:03:27Z http://irep.iium.edu.my/70935/ A narrative inquiry of Malaysian parents’ and caregivers’ experiences in detecting autism and providing interventions Sani, Badariah Wan Chik, Muhmad Noor Raslee, Nor Nadia Badzis, Mastura LC1390 Education of special classes of persons There is a lack of knowledge among Malaysian parents in detecting signs of autism in their children. This situation could lead to late detection and intervention. Children’s condition would be harder to improve and this would affect the parents’ and caregivers’ well-being. This study explored parents and caregivers’ experiences in recognizing signs of autism and providing intervention for their autistic children at home. The study used a qualitative research approach with a narrative inquiry method. A total of eleven respondents were interviewed. In-depth interviews and four non-participant observations were carried out. The study found ten signs of autism that parents and caregivers had noticed in their children’s behaviour. Children’s lack of speech or delay in speaking was common and the most noticeable sign for all eleven respondents. The respondents admitted having no knowledge and awareness about autism or signs of autism at the beginning. The periods before and after the detection of autism were difficult periods and many respondents had expressed feelings of sadness, worried as well as frustration. The severity of autism played an important role in alerting parents or caregivers to speed up the process of investigation. Respondents had used many types of interventions for their children and these included behavioural, developmental, family based, therapy based, alternative interventions and medications. Islamic practices were also used by Muslim respondents. The findings gave added knowledge and information on Malaysian parental concerns about signs of autism and provide suggested interventions for parents in caring for their autistic child. TEXTROAD Publishing Corporation 2017-08 Article PeerReviewed application/pdf en http://irep.iium.edu.my/70935/2/J.%20Appl.%20Environ.%20Biol.%20Sci.%2C%207%288%29124-134%2C%202017.pdf Sani, Badariah and Wan Chik, Muhmad Noor and Raslee, Nor Nadia and Badzis, Mastura (2017) A narrative inquiry of Malaysian parents’ and caregivers’ experiences in detecting autism and providing interventions. Journal of Applied Environmental and Biological Sciences (JAEBS), 7 (8). pp. 124-134. ISSN 2090-4274 E-ISSN 2090-4215 https://www.textroad.com/pdf/JAEBS/J.%20Appl.%20Environ.%20Biol.%20Sci.,%207(8)124-134,%202017.pdf
repository_type	Digital Repository
institution_category	Local University
institution	International Islamic University Malaysia
building	IIUM Repository
collection	Online Access
language	English
topic	LC1390 Education of special classes of persons
spellingShingle	LC1390 Education of special classes of persons Sani, Badariah Wan Chik, Muhmad Noor Raslee, Nor Nadia Badzis, Mastura A narrative inquiry of Malaysian parents’ and caregivers’ experiences in detecting autism and providing interventions
description	There is a lack of knowledge among Malaysian parents in detecting signs of autism in their children. This situation could lead to late detection and intervention. Children’s condition would be harder to improve and this would affect the parents’ and caregivers’ well-being. This study explored parents and caregivers’ experiences in recognizing signs of autism and providing intervention for their autistic children at home. The study used a qualitative research approach with a narrative inquiry method. A total of eleven respondents were interviewed. In-depth interviews and four non-participant observations were carried out. The study found ten signs of autism that parents and caregivers had noticed in their children’s behaviour. Children’s lack of speech or delay in speaking was common and the most noticeable sign for all eleven respondents. The respondents admitted having no knowledge and awareness about autism or signs of autism at the beginning. The periods before and after the detection of autism were difficult periods and many respondents had expressed feelings of sadness, worried as well as frustration. The severity of autism played an important role in alerting parents or caregivers to speed up the process of investigation. Respondents had used many types of interventions for their children and these included behavioural, developmental, family based, therapy based, alternative interventions and medications. Islamic practices were also used by Muslim respondents. The findings gave added knowledge and information on Malaysian parental concerns about signs of autism and provide suggested interventions for parents in caring for their autistic child.
format	Article
author	Sani, Badariah Wan Chik, Muhmad Noor Raslee, Nor Nadia Badzis, Mastura
author_facet	Sani, Badariah Wan Chik, Muhmad Noor Raslee, Nor Nadia Badzis, Mastura
author_sort	Sani, Badariah
title	A narrative inquiry of Malaysian parents’ and caregivers’ experiences in detecting autism and providing interventions
title_short	A narrative inquiry of Malaysian parents’ and caregivers’ experiences in detecting autism and providing interventions
title_full	A narrative inquiry of Malaysian parents’ and caregivers’ experiences in detecting autism and providing interventions
title_fullStr	A narrative inquiry of Malaysian parents’ and caregivers’ experiences in detecting autism and providing interventions
title_full_unstemmed	A narrative inquiry of Malaysian parents’ and caregivers’ experiences in detecting autism and providing interventions
title_sort	narrative inquiry of malaysian parents’ and caregivers’ experiences in detecting autism and providing interventions
publisher	TEXTROAD Publishing Corporation
publishDate	2017
url	http://irep.iium.edu.my/70935/ http://irep.iium.edu.my/70935/ http://irep.iium.edu.my/70935/2/J.%20Appl.%20Environ.%20Biol.%20Sci.%2C%207%288%29124-134%2C%202017.pdf
first_indexed	2023-09-18T21:40:41Z
last_indexed	2023-09-18T21:40:41Z
_version_	1777413119664979968

A narrative inquiry of Malaysian parents’ and caregivers’ experiences in detecting autism and providing interventions

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