Factors associated with burden of caring in Huntington’s disease

Huntington’s disease (HD) is an inherited progressive neurodegenerative disorder which affects motor function, cognition and the psychological state of HD patients. Its triad of unique symptoms compared to other neurodegenerative disorders might give rise to a higher level of burden for their carers...

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Main Authors:	Md Rosli, Najwa Hanim, Loi, Samantha M, Mangelsdorf, Simone, Farrand, Sarah, Eratne, Dhamidhu, Velakoulis, Dennis
Format:	Conference or Workshop Item
Language:	English
Published:	2018
Subjects:	R Medicine (General)
Online Access:	http://irep.iium.edu.my/68512/ http://irep.iium.edu.my/68512/1/HD%20Research%20Day%20Program%20Schedule%202018.pdf

id	iium-68512
recordtype	eprints
spelling	iium-685122018-12-28T03:50:39Z http://irep.iium.edu.my/68512/ Factors associated with burden of caring in Huntington’s disease Md Rosli, Najwa Hanim Loi, Samantha M Mangelsdorf, Simone Farrand, Sarah Eratne, Dhamidhu Velakoulis, Dennis R Medicine (General) Huntington’s disease (HD) is an inherited progressive neurodegenerative disorder which affects motor function, cognition and the psychological state of HD patients. Its triad of unique symptoms compared to other neurodegenerative disorders might give rise to a higher level of burden for their carers. Aims: The aim of this study was to explore factors associated with the burden of caring in patients with HD. Methods: Eighty-one HD patients and their carers participated in this study. Motor disturbances was assessed using the Unified Huntington’s Disease Rating Scale (UHDRS) motor scale, cognitive impairment was assessed with the Neuropsychiatry Unit Cognitive Assessment Tool (NUCOG), psychological status of both patient and carer were assessed using the Depression Anxiety Stress scale (DASS21), behavior of the patient was assessed with Revised Cambridge Behavioural Inventory (CBI-r) and carer burden was assessed with Zarit Burden Interview (ZBI). Results: Motor disturbances, attention and executive domains of cognition, psychological state of carers and patient’s behavior disturbances were found to affect burden of care in this study. Conclusion: HD has a major impact on carers. These findings highlight the needs for these factors to be targeted in order to reduce the burden among carer in HD. 2018-12 Conference or Workshop Item NonPeerReviewed application/pdf en http://irep.iium.edu.my/68512/1/HD%20Research%20Day%20Program%20Schedule%202018.pdf Md Rosli, Najwa Hanim and Loi, Samantha M and Mangelsdorf, Simone and Farrand, Sarah and Eratne, Dhamidhu and Velakoulis, Dennis (2018) Factors associated with burden of caring in Huntington’s disease. In: Huntington's Disease Research Day 2018, 7th December 2018, Victoria, Australia. (Unpublished)
repository_type	Digital Repository
institution_category	Local University
institution	International Islamic University Malaysia
building	IIUM Repository
collection	Online Access
language	English
topic	R Medicine (General)
spellingShingle	R Medicine (General) Md Rosli, Najwa Hanim Loi, Samantha M Mangelsdorf, Simone Farrand, Sarah Eratne, Dhamidhu Velakoulis, Dennis Factors associated with burden of caring in Huntington’s disease
description	Huntington’s disease (HD) is an inherited progressive neurodegenerative disorder which affects motor function, cognition and the psychological state of HD patients. Its triad of unique symptoms compared to other neurodegenerative disorders might give rise to a higher level of burden for their carers. Aims: The aim of this study was to explore factors associated with the burden of caring in patients with HD. Methods: Eighty-one HD patients and their carers participated in this study. Motor disturbances was assessed using the Unified Huntington’s Disease Rating Scale (UHDRS) motor scale, cognitive impairment was assessed with the Neuropsychiatry Unit Cognitive Assessment Tool (NUCOG), psychological status of both patient and carer were assessed using the Depression Anxiety Stress scale (DASS21), behavior of the patient was assessed with Revised Cambridge Behavioural Inventory (CBI-r) and carer burden was assessed with Zarit Burden Interview (ZBI). Results: Motor disturbances, attention and executive domains of cognition, psychological state of carers and patient’s behavior disturbances were found to affect burden of care in this study. Conclusion: HD has a major impact on carers. These findings highlight the needs for these factors to be targeted in order to reduce the burden among carer in HD.
format	Conference or Workshop Item
author	Md Rosli, Najwa Hanim Loi, Samantha M Mangelsdorf, Simone Farrand, Sarah Eratne, Dhamidhu Velakoulis, Dennis
author_facet	Md Rosli, Najwa Hanim Loi, Samantha M Mangelsdorf, Simone Farrand, Sarah Eratne, Dhamidhu Velakoulis, Dennis
author_sort	Md Rosli, Najwa Hanim
title	Factors associated with burden of caring in Huntington’s disease
title_short	Factors associated with burden of caring in Huntington’s disease
title_full	Factors associated with burden of caring in Huntington’s disease
title_fullStr	Factors associated with burden of caring in Huntington’s disease
title_full_unstemmed	Factors associated with burden of caring in Huntington’s disease
title_sort	factors associated with burden of caring in huntington’s disease
publishDate	2018
url	http://irep.iium.edu.my/68512/ http://irep.iium.edu.my/68512/1/HD%20Research%20Day%20Program%20Schedule%202018.pdf
first_indexed	2023-09-18T21:37:14Z
last_indexed	2023-09-18T21:37:14Z
_version_	1777412902134743040

Factors associated with burden of caring in Huntington’s disease

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