Psychosocial problems faced By thalassemia major patients of district Multan, Pakistan
Objective: To identify the psychosocial problems faced by thalassemia major patients in District Multan, Pakistan. Study design: A Cross sectional study Place & duration: The study was carried out at the four thalassemia Centers (i) Amina Blood Foundation (ii) Fatimid blood foundation (iii)...
| Main Authors: | , , , , |
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| Format: | Article |
| Language: | English English |
| Published: |
Pakistan Pediatric Association
2018
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| Subjects: | |
| Online Access: | http://irep.iium.edu.my/62767/ http://irep.iium.edu.my/62767/ http://irep.iium.edu.my/62767/1/PPJ_Article%20No.%202.pdf http://irep.iium.edu.my/62767/7/62767%20Psychosocial%20problems%20faced%20by%20thalassemia%20major%20SCOPUS.pdf |
| Summary: | Objective: To identify the psychosocial problems faced by thalassemia
major patients in District Multan, Pakistan.
Study design: A Cross sectional study
Place & duration: The study was carried out at the four thalassemia
Centers (i) Amina Blood Foundation (ii) Fatimid blood foundation (iii)
Minhaj ul Quran (iv) Thalassemia Centre, CH&ICH Multan, Pakistan
from 1st January 2017 to 30st May 2017.
Methodology: Two hundred thalassemia major patients were selected
through convenient sampling. Young people (age 12-18) suffering from
thalassemia major and regularly attending the thalassemia centers
were included. Other forms of thalassemia and refusal to participate in
the study were excluded. Data was collected through structured
interview and analyzed by using SPSS (Statistical Package for Social
Sciences) version 21 and Chi square test was used to check the
association. The questions related to psychosocial burden of
thalassemia e.g. disease burden on their education, time off school,
outdoor-indoor games, social activities, government support, hindrance
to get blood, people’s attitude, fear of life were asked.
Results: Two hundred Thalassemia major patients from four
Thalassemia Centres participated in the study. Majority 123 (61.5%)
were from Fatimid Foundation Multan whereas 46 (23.0%) patients
belonged to Thalassemia Centre of CH&ICH Multan, 19 (9.5%) were
from Amina blood foundation and 12 (6.0%) patients belonged to
Minhajul Quran Multan. Significant proportion of the respondents
consisted of males 114 (57%) while 86 (43%) were females. Majority
106 (53%) of the respondents family monthly income was PKR <20000
per month. Results indicated the significant association between the
education level of thalassemia major patients and gender
(X2=17.905a), (P=.000). Moreover there was the significant
association between the male and female thalassemia patients
participation in extracurricular activities (X2
=6.627a
), (P=.007).
Conclusions: The study concluded that thalassemia major patients
faced psychosocial burden in their life. The finding suggested that
psychosocial support as well as medical help should be provided to the
thalassemia major patients to minimize their burden. Social worker,
doctors, nurses, volunteers must provide the psychosocial support to
thalassemia major children and motivate their families. |
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