Misconceptions about disease among parents of thalassaemic patients: A qualitative study

Introduction: Poor understanding and knowledge about thalassaemia has been associated with a poor attitude towards the disease as a whole. Thus, it is the aim of this study to explore the poor attitude and misconceptions about thalassaemia among the parents of thalassaemic patients. Methods: This st...

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Main Authors:	Mat Zin, Nora, Muhammad, Naznin, Wan Su, Kamaruzaman, Abdul Rahman, Suzanah
Format:	Article
Language:	English English
Published:	Kulliyyah of Medicine, International Islamic University Malaysia 2016
Subjects:	BF173 Psychoanalysis BF712 Developmental psychology RB Pathology
Online Access:	http://irep.iium.edu.my/58675/ http://irep.iium.edu.my/58675/ http://irep.iium.edu.my/58675/1/09.%20MRS2016-ABSTRACT-BOOK-96.pdf http://irep.iium.edu.my/58675/7/17.%20IMJM-SUPPLEMENT-ISSUE.jpg

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spelling	iium-586752018-05-18T07:14:16Z http://irep.iium.edu.my/58675/ Misconceptions about disease among parents of thalassaemic patients: A qualitative study Mat Zin, Nora Muhammad, Naznin Wan Su, Kamaruzaman Abdul Rahman, Suzanah BF173 Psychoanalysis BF712 Developmental psychology RB Pathology Introduction: Poor understanding and knowledge about thalassaemia has been associated with a poor attitude towards the disease as a whole. Thus, it is the aim of this study to explore the poor attitude and misconceptions about thalassaemia among the parents of thalassaemic patients. Methods: This study was conducted over a six-month period. Five focus group sessions (5-6 per group) involving different sets of parents of thalassaemia patients attending the Paediatric Clinic of Tengku Ampuan Afzan Hospital, Kuantan, Pahang, Malaysia was carried out. Results: The study reveals that misconceptions associated with thalassaemia are still prevalent as shown in our study. Misconceptions that we encountered were related to the underlying cause, sign and symptoms, blood transfusion therapy and iron chelation therapy. Such incorrect knowledge was observed among parents coming from different educational backgrounds and socioeconomic status. As a result of misconceptions parents opt for alternative medicine or to seek treatment from traditional healers for thalassaemia. Conclusions: Several misconceptions still continue despite the nationwide campaign on screening programme to increase awareness about the disease. More effort is needed to improve the knowledge of the parents of thalassaemic patients as they have direct influence on the supervision of the management of thalassaemia patients. KEYWORDS: Misconception, Thalassaemia Kulliyyah of Medicine, International Islamic University Malaysia 2016-12 Article PeerReviewed application/pdf en http://irep.iium.edu.my/58675/1/09.%20MRS2016-ABSTRACT-BOOK-96.pdf application/pdf en http://irep.iium.edu.my/58675/7/17.%20IMJM-SUPPLEMENT-ISSUE.jpg Mat Zin, Nora and Muhammad, Naznin and Wan Su, Kamaruzaman and Abdul Rahman, Suzanah (2016) Misconceptions about disease among parents of thalassaemic patients: A qualitative study. International Medical Journal Malaysia, 15 (Supplemenet Issue). p. 96. ISSN 1823-4631 (Unpublished) http://iiumedic.net/imjm/v1/download/Volume%2015%20Supplement/MRS2016-ABSTRACT-BOOK-96.pdf
repository_type	Digital Repository
institution_category	Local University
institution	International Islamic University Malaysia
building	IIUM Repository
collection	Online Access
language	English English
topic	BF173 Psychoanalysis BF712 Developmental psychology RB Pathology
spellingShingle	BF173 Psychoanalysis BF712 Developmental psychology RB Pathology Mat Zin, Nora Muhammad, Naznin Wan Su, Kamaruzaman Abdul Rahman, Suzanah Misconceptions about disease among parents of thalassaemic patients: A qualitative study
description	Introduction: Poor understanding and knowledge about thalassaemia has been associated with a poor attitude towards the disease as a whole. Thus, it is the aim of this study to explore the poor attitude and misconceptions about thalassaemia among the parents of thalassaemic patients. Methods: This study was conducted over a six-month period. Five focus group sessions (5-6 per group) involving different sets of parents of thalassaemia patients attending the Paediatric Clinic of Tengku Ampuan Afzan Hospital, Kuantan, Pahang, Malaysia was carried out. Results: The study reveals that misconceptions associated with thalassaemia are still prevalent as shown in our study. Misconceptions that we encountered were related to the underlying cause, sign and symptoms, blood transfusion therapy and iron chelation therapy. Such incorrect knowledge was observed among parents coming from different educational backgrounds and socioeconomic status. As a result of misconceptions parents opt for alternative medicine or to seek treatment from traditional healers for thalassaemia. Conclusions: Several misconceptions still continue despite the nationwide campaign on screening programme to increase awareness about the disease. More effort is needed to improve the knowledge of the parents of thalassaemic patients as they have direct influence on the supervision of the management of thalassaemia patients. KEYWORDS: Misconception, Thalassaemia
format	Article
author	Mat Zin, Nora Muhammad, Naznin Wan Su, Kamaruzaman Abdul Rahman, Suzanah
author_facet	Mat Zin, Nora Muhammad, Naznin Wan Su, Kamaruzaman Abdul Rahman, Suzanah
author_sort	Mat Zin, Nora
title	Misconceptions about disease among parents of thalassaemic patients: A qualitative study
title_short	Misconceptions about disease among parents of thalassaemic patients: A qualitative study
title_full	Misconceptions about disease among parents of thalassaemic patients: A qualitative study
title_fullStr	Misconceptions about disease among parents of thalassaemic patients: A qualitative study
title_full_unstemmed	Misconceptions about disease among parents of thalassaemic patients: A qualitative study
title_sort	misconceptions about disease among parents of thalassaemic patients: a qualitative study
publisher	Kulliyyah of Medicine, International Islamic University Malaysia
publishDate	2016
url	http://irep.iium.edu.my/58675/ http://irep.iium.edu.my/58675/ http://irep.iium.edu.my/58675/1/09.%20MRS2016-ABSTRACT-BOOK-96.pdf http://irep.iium.edu.my/58675/7/17.%20IMJM-SUPPLEMENT-ISSUE.jpg
first_indexed	2023-09-18T21:23:00Z
last_indexed	2023-09-18T21:23:00Z
_version_	1777412006497746944

Misconceptions about disease among parents of thalassaemic patients: A qualitative study

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